Establishing a dementia registry could improve allocation of brain health resources in Virginia

Virginia Law set to prioritize Brain Health and Resource Allocation with Dementia Registry Project

Virginia Memory Project set to become state law, prioritizing brain health and resource allocation

A dementia registry project in Virginia is on the brink of being codified into state law. The Virginia Memory Project, a collaboration between Virginia Commonwealth University and the Virginia Department of Health, aims to catalog dementia cases and other neurodegenerative diseases in the state to inform public policy.

The project is one of four statewide dementia registries in the country supported by the Centers for Disease Control and Prevention under the CDC’s Building Our Largest Dementia (BOLD) Infrastructure for Alzheimer’s Act. This registry collects data on disease cases and caregivers in the state, with the goal of providing policymakers and public health leaders with information about the prevalence of cognitive impairments, resource allocation, and policy solutions for individuals living with memory loss and their caregivers.

LeadingAge Virginia has expressed support for legislation that would establish this project into state law, emphasizing the importance of collecting data related to brain health, memory, and caregiving for all adult Virginians. Melissa Andrews, President and CEO of LeadingAge Virginia stated that “The information gathered through this project will help prioritize resources for individuals with memory loss and caregivers throughout the state, including those in various care settings beyond just assisted living facilities.”

Currently, over 700,000 cases of dementia have been identified through this initiative across the state. Individuals aged 18 and older can participate by completing a confidential online survey. This effort aims to provide valuable data to support well-being among individuals with cognitive impairments and their caregivers in Virginia.

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